I’ve been on hiatus. Or would you call it a vacation? It hasn’t been much of one in life, but online it has for certain.
I just haven’t had the time to put effort into blogging like I need to because the house and the kids have needed me so much more. It’s one of those seasons in life – one where I try to keep up while feeling like I’m just barely making it and trudging along. It will get better but for now, I’m just a head above drowning in it all.
This week has been a medication adjustment week for Jackson. Last week he broke through with a seizure. Just when you think you can breath again, you stop and you realize this may never end.
It will never get easier walking in to see my baby breathless – lifeless – wondering if he’s going to come out of this one – running to grab the Diastat just to make the seizures stop. It’s something only a seizure parent can understand. It’s become a fear for me, wondering when a seizure will hit us next and how many more will follow. Wondering if the next one will take my son from me.
I can honestly say, I didn’t fear this disorder until now. I didn’t fear it with Emma. I was beginning to with Laycie. But with Jackson, fear has set me on edge. Just how easily they could be gone has become reality.
I watch daily as friends battle this same disorder with these same fears I have. I watch daily as friends share how other seizure mother’s have lost their babies – both young and older children. And I see the same fear I carry in their posts, their statements, their shares. Nothing can prepare us for this.
It’s life – and we live it daily because we have to. We watch others who take the simple things for granted: like playing on a slide or crying it out to sleep. Our children can’t do these things without us holding our breath and waiting to hold them just in case a seizure happens.
I didn’t come here to talk about Epilepsy tonight but somehow it consumes our life. It IS our life. There’s no way around it, no changing it, no ignoring it and no moving forward from it. It’s here every day affecting how we live.
And so we wait to see what tomorrow is going to bring.
My Little Pony is a favorite among my girls so we were very excited to be able to review this app for PlayDate Digital Inc. on the iPhone and iPad. PlayDate Digital is a top company in providing quality apps for educational purpose and one that we truly enjoy. Their My Little Pony, Party of One App was a hit in our home.
Twas the week of Thanksgiving and nothing was going on, except Turkey Day preparations and home keeping repairs. Yep, that’s the gist of our week. Planning some serious cleaning in the bedrooms this week.
Friday night, I went to the beach and bought Emmalee a new mattress for her bed. I also invested in an egg shell, a vinyl cover, a waterproof cloth cover, and two cloth waterproof mats for it. I want to keep this one looking new for a while.
While I was shopping, I also bought her a new Zebra throw for the bed. Since Emma is a heavy sleeper and often gets hot at night, I plan to remove her original comforter and let her sleep cozy with the throw. Plus it’s easier to wash with her sheets.
So I will be spending the week cleaning in the girls room, I hope. I want to go through all their way-to-many clothes and toys, donating those things we no longer need and that don’t fit them. Shoes too – they just have too much stuff!!
What does your Thanksgiving week look like?
Home Is Where the Heart Is
I have taken a few days away from writing blog posts, except for reviews, and I’ve been concentrating on my photography for the past week. I’ve also been working on our family’s tree and doing some much needed housework. The mix of everything has definitely been keeping me busy.
The photos are coming out great and I have several shoots lined up in the next few weeks which will be keeping me very busy now the Crew year has ended. It’s been great learning new things, editing and seeing images “pop” in ways I never expected. I’m finding that I am enjoying taking pictures again.
The family tree has also been fun. I’ve learned so much about our ancestors that I never expected. It’s been interesting to learn where we came from and telling the kids stories I’ve come across about our various ancestors. They’ve enjoyed the history and the family relations as much as I have.
I am excited for all the new ventures in our lives and the Holidays that are coming up as well. It’s a busy but fun life. It’s fulfilling and I find that I’m once again Luv’N Lambert Life.