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Beginning July 2017 {Thoughts From Me}

July 5, 2017 by Dana

June was a pretty tough month for us. Don didn’t work several weeks. There were no calls for a carpenter. This makes things hard for sure.

July didn’t start that great either. I had a brief stomach virus that really hit me hard. Thankfully, I was the only one. I gave the dog a haircut too and was down for two days with my back hurting (whiplash from a car accident long ago).

I ran out of my medication for my bleeding and just let them stop for a few weeks to see what would happen. It returned. I started the med back after a few days of trying to see if my body would balance out. It didn’t.

I know my iron is low again. I’ve been trying to build it up with lots of Tuna and Spinach but it’s slow going since my body rejects iron instead of absorbing it. I know I’ll get there though.

I know someday I’ll look back and see the lessons in this time but for now it’s just a struggle. I’m too tired to get much done except the basics with my babies. Next month is home inspection and our lease renews so I’m hoping I can get the house in order before then. It’s a slow process but the kids have been amazingly helpful.

We’re also working on new routines. So far things are going well with those but routines take time to master. I’m proud of my kids hard work though.

So this is where we begin our July. Just trying to get through our day to day together. It’s slow going but we will get there.

Until next time…
Dana

A Case of the Sickies {Thoughts From Me}

July 9, 2014 by Dana

Sickness has hit our house. It’s in full force. The home that usually has little more than a seizure a week hit it, now has the dreaded Summer Colds.

It started with Jack. He developed a terrible fever of 101 last week. It spiked to 103 a few times. His throat was sore. He vomited and I want mention the amount of diapers that needed changed. It was awful.

He got better. We had a few days of bliss without any sickness and then it hit Grandma, Winston and Laycie. Laycie took the stomach icky part of the bug while Grandma and Winston took the throat issues. Laycie has a mild sore throat as well.

Today, my poor sweet Winston woke up unable to talk because his throat is inflamed. I immediately had him start drinking water, as much as possible. I gave him some medicine and an allergy pill as well to help with the swelling reaction. Later I gave him some chicken broth boiled with Garlic and then some tea with honey and lemon. Both helped.

This afternoon, Laycie began feeling badly. So terrible that she needed a nap with Mommy. She’s been mostly asleep all afternoon and is now sleeping again beside me. She doesn’t seem to have a fever but she does have an upset tummy and cough. I gave her some medicine and of course, her seizure medicine so that Monster doesn’t attack right now. Sleep seems to be helping her.

I’m trying my best to avoid this sickness and to help Emmalee avoid it with me. So far so good but it’s not over yet. I hope I don’t curse us!

Please say a prayer that these sickies pass us quickly and that our household is soon back to normal. It breaks my Momma-heart to see my sweet babies sick.

Until next time…

Another Day In the Life With Epilepsy {Epilepsy Awareness}

December 11, 2013 by Dana

I’ve been on hiatus. Or would you call it a vacation? It hasn’t been much of one in life, but online it has for certain.

I just haven’t had the time to put effort into blogging like I need to because the house and the kids have needed me so much more. It’s one of those seasons in life – one where I try to keep up while feeling like I’m just barely making it and trudging along. It will get better but for now, I’m just a head above drowning in it all.

This week has been a medication adjustment week for Jackson. Last week he broke through with a seizure. Just when you think you can breath again, you stop and you realize this may never end.

It will never get easier walking in to see my baby breathless – lifeless – wondering if he’s going to come out of this one – running to grab the Diastat just to make the seizures stop. It’s something only a seizure parent can understand. It’s become a fear for me, wondering when a seizure will hit us next and how many more will follow. Wondering if the next one will take my son from me.

I can honestly say, I didn’t fear this disorder until now. I didn’t fear it with Emma. I was beginning to with Laycie. But with Jackson, fear has set me on edge. Just how easily they could be gone has become reality.

I watch daily as friends battle this same disorder with these same fears I have. I watch daily as friends share how other seizure mother’s have lost their babies – both young and older children. And I see the same fear I carry in their posts, their statements, their shares. Nothing can prepare us for this.

It’s life – and we live it daily because we have to. We watch others who take the simple things for granted: like playing on a slide or crying it out to sleep. Our children can’t do these things without us holding our breath and waiting to hold them just in case a seizure happens.

I didn’t come here to talk about Epilepsy tonight but somehow it consumes our life. It IS our life. There’s no way around it, no changing it, no ignoring it and no moving forward from it. It’s here every day affecting how we live.

And so we wait to see what tomorrow is going to bring.