Epilepsy is a cause that is near and dear to our hearts. For over 100 years, Epilepsy has affected our family in some way. It is a generational link that connects us daily into our past, present and future.
Our familial Epilepsy has been passed down from my Great Grandfather to my Grandfather, my Mother, myself and now to both of my daughters and possibly my youngest son. It is safe to assume that unless God and genetics sees fit otherwise, at least one of my grandchildren in future generations will also have this disorder. It is obviously, for us, passed upon a gene though we are still in testing to pinpoint which one.
My own relationship with Epilepsy began over 30 years ago, when I was only a baby. An unforeseen crib accident began my journey with this disorder. Over the years, I have been blessed to outgrow my seizures for the most part, no longer requiring medication for control of them. Though I do occasionally suffer from related activity, it no longer controls my life.
Both of my daughters have Epilepsy. They began having seizures at ages 3 and 4 months respectively. It later dawned on me that their seizures began immediately after having their first seizures of vaccines as infants, though there is no proof of connection for either case.
My oldest, Emmalee, has since been cleared of her diagnoses of Epilepsy. She no longer needs medication or control to prevent them. She still has occasional migraines related to them and mild activity if she is extremely tired or stressed but we control that with a routine lifestyle with lots of rest.
My youngest daughter, Laycie, still has active Epilepsy. She was diagnosed with Rolandic Epilepsy with BECTS type seizures in April of 2012. She is currently taking Depakote to control her activity twice daily. Her last seizure was June 11, 2013 and it was her worst yet.
Laycie also has ADHD, as does my oldest son, and has high OCD tendencies. She is in therapy for these things, as well as speech and other delays she has from her Epilepsy.
Recently, my 10 month old son has also began showing signs of Epilepsy. He had his first seizure episode on July 7, 2013. He is currently going through testing to determine a diagnoses.
I began this blog to share with other’s about Epilepsy, Homeschooling, and our life combining those two things. We chose to homeschool because of this disorder, among other reasons and we have been blessed to enjoy every moment. The great thing about homeschooling is that it allows my children plenty of time for rest and little stress which can increase their Epileptic activity.
The following is a list of our blog posts about our life with Epilepsy in order from newest to oldest:
Dreading Days with the Epilepsy Monster
Double Trouble With the Epilepsy Monster
Weak But Blessed In The Normalcy
And So Jackson’s Journey Begins
The Epilepsy Monster Strikes Again
Weak and Loved For Epilepsy (Guest Post)
Migraine Day and Special Needs
Medicine Side Effects In Epilepsy
Demonic Possession Vs. Epilepsy
Epilepsy Awareness Month Day 5
Epilepsy Awareness Month Day 4
Epilepsy Awareness Month Day 3
Epilepsy Awareness Month – Day 2
To learn more about Epilepsy, please visit Epilepsy.org!