Epilepsy, Family, and Advocacy
Epilepsy has been part of our family story for generations. It has shaped how we understand health, resilience, and care, and continues to inform the way we move through life and support others.
In our family, epilepsy has appeared across multiple generations—from my great-grandfather to my grandfather, my mother, myself, and my children. While genetics do play a role, each experience has been different, and epilepsy has never followed a single path for us.
My experience with epilepsy began early in life and gradually resolved over time. While it no longer defines my day-to-day, it shaped how I listen, advocate, and support others when life feels uncertain.
All three of my children who experienced epilepsy have now outgrown their seizures. Walking alongside them through those years shaped how we approach care—with patience, flexibility, and respect for each child’s experience.
Epilepsy influenced many of the choices we made as a family, including our decision to homeschool in earlier years. Creating a low-stress, flexible environment allowed space for rest, healing, and growth. While our approach to learning has evolved, that same flexibility continues to guide how we live.
Today, epilepsy is no longer a daily part of our life, but it remains an important part of our story—one that deepened our empathy and continues to shape how we show up for others.
Our approach to advocacy is rooted in lived experience—listening well, sharing honestly, and helping others feel less alone. If you’d like to read more, you’ll find our journey shared through the links below.
Epilepsy Awareness Posts
Dreading Days with the Epilepsy Monster
Double Trouble With the Epilepsy Monster
Weak But Blessed In The Normalcy
And So Jackson’s Journey Begins
The Epilepsy Monster Strikes Again
Weak and Loved For Epilepsy (Guest Post)
Migraine Day and Special Needs
Medicine Side Effects In Epilepsy
Demonic Possession Vs. Epilepsy
Epilepsy Awareness Month Day 5
Epilepsy Awareness Month Day 4
Epilepsy Awareness Month Day 3
Epilepsy Awareness Month – Day 2
To learn more about Epilepsy, please visit Epilepsy.org!

