One of the things I love is coming to my blog and seeing which of my posts are popular. Most of them are our Epilepsy posts. When I began blogging, I didn’t intend to write about that aspect of our lives but I wanted others to not feel so alone in this journey that we’ve lived with now for generations.
I’m lucky. I have generations of family who’ve had Epilepsy, who I can relate with. Not everyone has that. Most of the families I’m in contact with daily don’t have anyone they know that has Epilepsy and they often have no knowledge of Epilepsy itself.
Now it’s not lucky that we’ve had to deal with seizures for generations on generations. This is a mean disorder that holds no kindness to it’s victims. But I have history to compare to, especially for myself and my children. I know what I’ve lived with. I know what they’ve lived with and how it affects each of us.
I have 3 children with Epilepsy. I’ve been to every appointment with them on this. I’ve asked questions, had medications changed and adjusted, address dietary issues, made thorough notes about each type of seizure we all have. I’ve taken on this part of parenting willingly because if I didn’t, who was going to? But more than that, God equipped me to do this. He knew when He chose me I could do it, even when I questioned.
I’ve been through the ups and downs of this disorder as a Mother. I’ve explained as much as I can to my children when they ask why this happens to them or why they need medications, or why they need an MRI or an EEG, why we have to stay at the hospital this week. This is our life. This is what we do. Epilepsy isn’t a choice but it is our life.
When you’re feeling down about Epilepsy, remember to look up, to pray, to allow yourself peace and grace as a parent. Don’t beat yourself up. There’s nothing we can do to change the fact we have this disorder, nothing we can do to change it. We accept it and move on to help our children deal with their days better.
It’s been a while since I posted about Epilepsy. It’s something I try to ignore some days but it’s always there. When I least expect it, it will rear it’s ugly head and remind me it’s still here lurking in the sidelines. And then I remember there are others like us who also deal with this. I pray our blog helps you to deal with the day to day and know you are not alone.
Truth is, there is no miracle fix for this disorder. I wish there was. There is no easy self-remedy. There is no exceptional hidden method that will heal, prevent or change this for you or your child.
I cannot tell you what to use for you or your family. I cannot suggest any method to make this go away. I can only share with you what has worked for us.
There are many alternative treatments available for treating Epilepsy. There is also medication which sometimes is the best thing you can do for yourself or your loved one. Medication is always our first choice for treatment but when medication alone didn’t work, I began to research alternatives which lead me to create the Facebook group, Epilepsy and Essential Oils/Natural Treatments.
In our group, I share what things I find online that I have personal found helpful or I think others may find helpful. Many of these treatments I have not tried myself but I do see others in various Epilepsy groups who may have given it a try. Sometimes the alternative treatments work and sometimes they don’t.
You see alternative treatment is just like medicine. What works for one person or family will not necessarily have the same results for the next person or family. We’re all different. We all metabolize medications, herbs, essential oils, etc differently. Therefore, all medications and alternative treatments are trail and error.
But don’t give up hope that you will find something that helps your loved one or yourself. There’s always a chance that the one thing you try helps you have a better life. There’s always a chance that you will discover that “miracle” treatment you need for your loved one.
For us, that was Essential Oils. When my son was medication resistant Essential Oils gave us back a small part of normalcy and allowed him to get through his seizures with less stress. It wasn’t a 100% fix for him but it was hope and a small blessings none-the-less.
The one thing I have learned on this journey with Epilepsy is that we are the best researchers and advocates for our loved ones but we must have a solid, trusting relationship with our neurologists as well. I listen to their advice just as much as I follow my own gut on this. And it has led to us being able to find stable treatments for my children and myself.
Do your own research as well. Follow the instincts you were born with. Search until you find the answers you seek. If you feel strongly there’s a better way, then you’ll usually find there is.