Luv'N Lambert Life

A blog about living with Epilepsy, IBHS, Homeschooling and so much more

epilepsy momma

Quick Update: March 2017 {Severe Anemia Awareness}

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Monday I went to the doctor for the first time in years for myself.  I’ve tried for a year to get this appointment and finally got it. I definitely wasn’t going to miss it.

This appointment was to establish a physician for me and to obtain a physical which I really needed since I haven’t been to a doctor outside an OB in forever.  My checks for my pregnancies were also fine and blood work was always good so I never worried about it.  I’m rarely sick.

The check up went well. I love the new dr.  She’s so sweet and really listened to my concerns.  She went through all the details.  She issued an EKG to check my heart after my blood pressure dropped on Saturday for no apparent reason.  She also had blood work done to check that everything was okay.  I left happy with my appointment with her.

This morning, I received two calls on my cell phone which I never get calls on.  I assumed it was from the GYN I was being referred to by the doctor and I was sleeping with Laycie beside me so I didn’t want to answer and disturb her.  I figured it could wait.

When I finally did get up, I realized it had been the doctors office.  My dr and her nurse had both called and their voices sounded really concerned.  I immediately gave them a call back.

My blood work showed that my hemoglobin level is very low at a 7 and my cell count is down as well.  This explains why I have been so very tired lately.  It also explains why my BP dropped as it did.

So the doctor has me scheduled for a blood transfusion tomorrow.  Iron is not an option for me as I’m allergic to it and it gives me severe migraines.  And I definitely can’t keep going with a low blood level.  She really wanted me in today but they weren’t able to fit me into the schedule until tomorrow.

I’ve never had a blood transfusion that I can remember.  I’m told it’s like getting IV fluids.  I’m hopeful it is.  I’m scared it isn’t.  But overall, I’m looking forward to my levels being corrected and to feeling better so I can get back to my job as Mom.  It’s hard to be down when you’re the Mom of children who have special  needs and who need you.

I’m praying the kids remain stable and no seizures happen while I’m dealing with this.  God is usually good to us and keeps things in control so I know he’s got my back.  I’m hoping one transfusion is all I need and that my GYN appointment comes up with answers for my health that I’m needing so we can get back to a normal life again.

For now though, I wanted to update.  I’m taking my phone and iPad along tomorrow so I’m sure I’ll be online trying to keep myself occupied but I won’t be back here for a few days.

Until next time…

Dana

Epilepsy Awareness Month 2014 {Epilepsy Awareness}

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Here we are in November and it’s Epilepsy Awareness Month again.  It’s time to reach out, share and spread the word.  If you know me and you read our blog then you know I do this all year, not just during November.

I spread awareness for my children.  I share our ups and downs of how living with this disorder daily affects our lives.  Living with Epilepsy really is a way of life.

Living with Epilepsy and raising three children with this disorder is probably the hardest thing I have had to do in my lifetime.  Watching my babies grow up and not knowing if they will be here with me tomorrow or even in the next hour is one of the worst things I have had to come to live with.  We are not promised tomorrow and nothing makes that more real than seeing your child lay seizing while you can do nothing but pray for it to pass.

It’s hard for my children too.  Watching their siblings and wondering if this will be the final time they are able to see and love them is hard.  Not knowing when the next seizure will happen or even what will trigger it is hard as well.  They are constantly on the lookout for one another.

Then there is being the person who has Epilepsy.  Not knowing when a seizure will happen.  Not knowing what is happening to you when they do happen.  It’s traumatic and indescribable.

Epilepsy is such an unpredictable disorder.  We never know when it will show up.  It comes unexpectedly, and usually in the least convenient of times.

This is our life and what we live with every day.  It’s not for the faint of heart but just to live and love makes every moment worth it.  This month we will share about our life with Epilepsy and through the year to come just as we always have.  Look for more posts to come soon.