Here we are in November and it’s Epilepsy Awareness Month again. It’s time to reach out, share and spread the word. If you know me and you read our blog then you know I do this all year, not just during November.
I spread awareness for my children. I share our ups and downs of how living with this disorder daily affects our lives. Living with Epilepsy really is a way of life.
Living with Epilepsy and raising three children with this disorder is probably the hardest thing I have had to do in my lifetime. Watching my babies grow up and not knowing if they will be here with me tomorrow or even in the next hour is one of the worst things I have had to come to live with. We are not promised tomorrow and nothing makes that more real than seeing your child lay seizing while you can do nothing but pray for it to pass.
It’s hard for my children too. Watching their siblings and wondering if this will be the final time they are able to see and love them is hard. Not knowing when the next seizure will happen or even what will trigger it is hard as well. They are constantly on the lookout for one another.
Then there is being the person who has Epilepsy. Not knowing when a seizure will happen. Not knowing what is happening to you when they do happen. It’s traumatic and indescribable.
Epilepsy is such an unpredictable disorder. We never know when it will show up. It comes unexpectedly, and usually in the least convenient of times.
This is our life and what we live with every day. It’s not for the faint of heart but just to live and love makes every moment worth it. This month we will share about our life with Epilepsy and through the year to come just as we always have. Look for more posts to come soon.
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