These days I feel like I am just floating through. My mornings are filled with watching Laycie, making sure she sleeps long enough to keep the seizures away. My afternoons are spent waiting and watching for Jackson next seizure.
We are stuck in limbo… waiting. There is nothing to do to prevent them at this time. There is no way to know what will happen next.
Because Jackson was on so many medications last month, he needs a brief detox before starting the next one: Phenobarbital. He will start the new medicine this coming Friday but until then he will be on Klonopin while we give his body time to adjust from the last medicine.
This makes 6 medicines in less than a month that have been absorbed into my sweet boys bloodline. I don’t even want to think about how this has effected him and pray that it really hasn’t. I also pray that the Phenobarbital is the last drug for at least the next year for him.
I’m thankful that my sweet Laycie has remained controlled during this time though things are far from perfect with her. She’s lethargic in comparison to her normal self. She’s picky when eating. She melts down mid afternoon. But there are no seizures, save a few mild twitches through the night.
So this is where we are at. God is surely holding me up, because I don’t know how I manage to make it through the seizure every few nights right now. I’m afraid to leave the house for him seizing. I’ll be so thrilled when we have control again.